Oregon Health & Science University
Background: Breastfeeding an infant with phenylketonuria (PKU) is possible, but requires mastering a complex management routine that combines limited breastfeeding with phenylalanine-free formula to maintain therapeutic phenylalanine levels and reflects mothersâ efforts to continue breastfeeding in this challenging situation. Purpose: This study described the prevalence and duration of breastfeeding infants with PKU in the United States and Canada, and described mothersâ experiences breastfeeding in the context of PKU. Methods: This was a cross-sectional descriptive study. Although this study was based at Oregon Health & Science University, mothers were recruited from across the United States and Canada. In phase 1, mothers (n = 103) with one child with PKU completed the online survey between November, 2010 and May, 2011. The online survey consisted of a questionnaire that contained sections about the demographic characteristics of mothers and infants, and infant feeding history. R
School of Nursing
Banta-Wright, Sandra A., "Mother's experiences breastfeeding infants with phenylketonuria" (2012). Scholar Archive. 955.