Document Type


Degree Name



Department of Public Health and Preventive Medicine


Oregon Health & Science University


Background: Neurocysticercosis, or infection of the brain by larvae of the pig tapeworm, Taenia solium, has been reported in the literature with increased frequency during the past 3 decades in the United States. Population-based assessments of NCC are based on hospital discharge data, but do not include the outpatient population of NCC. I provide a population-based perspective of the complete spectrum of care of neurocysticercosis in the insured population of Oregon using the Oregon All Payers All Claims (APAC). I describe the demographic characteristics, frequency of neurocysticercosis-associated diagnoses and procedures, and disease burden of people with neurocysticercosis, and evaluate the APAC database as a source of demographic and financial information about NCC in Oregon.

Methods: A list of unique individuals with at least one paid or capitated neurocysticercosis claim during the study period was generated and all claims for these individuals were extracted from the APAC database. Demographic characteristics, associated diagnoses and procedures and pay information were described in the study population. Truncated negative binomial regression was used to characterize the association between claim counts per quarter and demographic and associated diagnosis variables.

Results: 125 individuals with NCC were identified during the study period with total paid claims of $2,407,532. Over 70% (5887/8224) of their paid and capitated claims did not have an associated neurological diagnosis. A total of 5925 claims, representing 72% of all paid and capitated neurocysticercosis claims, were made in outpatient settings, while 10% of claims (818) were inpatient, and 337 (

Conclusions: Outpatient claims of people with NCC are considerable and the associated diagnoses are different than inpatient claims. Previous studies have underestimated the prevalence of mental illness and headache associated with neurocysticercosis. Greater effort should be made to provide neurocysticercosis education to mental health and primary care providers. The APAC database does not appear to provide reliable demographic or financial information for the assessment of the economic burden of NCC in Oregon.




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