Document Type


Degree Name



Oregon Health & Science University


Background: Food insecurity, the limited or uncertain availability of nutritionally adequate and safe food, negatively affects children's development and health. Households including children with hemophilia may be at increased risk for food insecurity due to hemophilia-related medical expenses. Objectives: The purpose of this pilot study was to determine the prevalence and predictors of food insecurity among children with hemophilia and their families. Methods: Data on household food insecurity and health status, as assessed at annual comprehensive clinical appointments of children with hemophilia between May 2012-January 2013, were obtained by chart review. Descriptive statistics were applied to summarize participant characteristics. Chi-Square analyses, t-testing, and logistic regression models were used to demonstrate associations between food security status and participant characteristics. Results: Data were available for 42 male participants, aged 0-17 years. By severity, 42.9% had mild or moderate hemophilia, and 57.1% severe. Sample prevalence of household food insecurity was 16.7% (95% CI, 5.4-28.0%), lower than the national prevalence among all households with children. Food insecurity was rare among households with children with mild and moderate disease (5.6%; 95% CI, 0-16.2%) and concentrated among households with children with severe disease (25.0%; 95% CI, 7.7-42.3%). Households with children who were older, taller, heavier, had higher BMI, or were a minority race or ethnicity were at increased risk for food insecurity (all P>0.05). Conclusions: Households with children with severe hemophilia are at increased risk for food insecurity. This study provides pilot data showing the need for screening and linkage to resources as a routine part of care, and demonstrates a need for improved understanding of the predictors of food insecurity in households with children with hemophilia.




Graduate Programs in Human Nutrition


School of Medicine



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